February 28 is Rare Disease Day. As told to Jacquelyne FroeberWhen I was 6 years old, I was running around outside with my friends when I felt my body go limp.I collapsed like a rag doll next to a bright-red fire hydrant — a matching stop sign loomed overhead. As my friends ran to get my mother, I used the fire hydrant to help me stand up. I wasn’t going to let a little fall stop me from having fun.The truth was, that wasn’t the first time my body just stopped working. I had no clue what was going on, but my mom knew I was having some issues so she took me to see a healthcare provider (HCP). A...

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